Things I Wish Others Knew About Chronic Pain

Published on 4 January 2025 at 21:17

I am sharing my story to help others better understand what it is like living with chronic pain. I am also writing this for others with similar experiences so they know they are not alone. I can only attest to what I have experienced; we all have different perceptions. Additionally, I am getting these heavy thoughts out on paper to help me cope with the last few years of my life.

Brief History

I have experienced chronic pain since September 2020. I have seen many healthcare providers but do not have a clear diagnosis. My pain has changed and mutated over the years, affecting all parts of my body. There are days when I have difficulty walking, cleaning, or showering. Yet, all of my tests come back “normal”. So much of my life has been consumed by this undiagnosed condition. Writing this is one of the ways I am fighting back and finding myself again.

What is Chronic Pain to me?

I would describe living with chronic pain as lonely, exhausting, soul-crushing, defeating, frustrating, and anxiety-provoking. 

As I never know what fresh hell I may wake up to in the morning, there is always some apprehension when getting ready for bed. Not knowing what new tricks my body may do moment to moment, it is intractable to work a regular job, make plans with friends, or schedule medical appointments. Even minor tasks like making the bed, getting dressed, and driving a vehicle can cause egregious pain. 

My hope in sharing this information is that others will be more mindful when someone shares they have chronic pain. I fear telling others about my pain because so many have judged me, told me it was my fault, or insinuated I was making it all up. I have pain every single day of my life. Some days are worse than others. I have lived this way long enough that I have learned to mask. I can have a smile on my face, be laugh with friends, and still have pain. 

So please, if you want to know more, ask questions and trust what the person shares. It is okay to not fully understand what they are experiencing. Being open, caring, and empathetic can go a long way.

 

Thank you for reading! More to come...

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